L had a little seizure this morning. Not too bad, but once again, as it was starting, we could see he was more concerned about losing control of his bladder than the seizure itself. And since fear and frustration are both triggers, I think his anxiety about wetting is actually triggering them now. He cries about something or other, freaks out thinking he is going to pee, and then triggers the seizure. I think that also might explain why he's had so many more recently.
We don't scold him about the incontinence (obviously) since it is not his fault. Every time, we reassure him that it isn't his fault and change his clothes without making a big deal of things. I'm also making the conscious effort not to use the word accidents. He isn't having accidents, he's dealing with the effects of a seizure. Maybe it's a silly distinction, but I think it may be important. At least to him.
Unfortunately, I am afraid he is picking up on my own stress about it- honestly it worries me more than the seizures, when I think of him going to school. You'd have to be a low-life to make fun of someone for having a seizure- but wetting? That's prime elementary school teasing material.
Anyway, after he came around and was settling down, I asked him a few questions about what seizures are like. It's nice that he's verbal enough to be able to explain things a little now.
Me: Does it hurt when you have a seizure?
L: Nope! (Huge smile! I'm amazed how quickly he rebounds).
Me: What does a seizure feel like?
L: It's like <squinches up face and makes a pitiful, very puny-sounding baby cry sound>
Me: What feelings do to have when you have a seizure?
L: Sad. And scared.
Me: Can you hear me talking to you when you're having a seizure?
L: It's <same face and puny sound as before.> I can't.
Me: If your friend had a seizure, what would you do?
L: I'd say, "I'm here, I'm here," lots of times to her.
No more questions after that last tear-jerker answer.