L's official diagnosis last year was "Reflex Anoxic Syncope and Seizures".
The seizures were so obvious that I never really paid any attention to the word syncope. He would have an RAS episode, then have a seizure. Every once in while, he'd manage to work his way out of it before the seizure started, but for the most part, once it started, it always ended the same way.
But now that L has basically stopped having seizures, I have been able understand the syncope a little better. In the last week or so, L has had a few episodes. He hasn't had seizures, but he has lost consciousness. It's hard for me to accept, sometimes, that as hard as I work to stop his seizures, he will still have RAS. His heart will still stop and his breathing will still stop. The end of his seizures hasn't meant the end of his suffering.
In the last few weeks, we've worked with L to help him snap of out it before he gets to the "point of no return." My friend told me that with their daughter, they taught her to take a deep breath at the count of three. We've tried it lately, and it helps. I wish diet could be the only answer, but it seems I still need a few more tools up my sleeve.