And as if that wasn't enough, today I met another mother of a child with RAS. In person! Even though it's rare, I knew that in a city of 10 million, there was sure to be at least a handful of families dealing with this condition. I just didn't know how to connect with them - and I certainly didn't expect to find one right under my nose.
I could hardly believe it when Michelle introduced herself this morning and told me about her daughter. It turns out that one of the preschoolers in M's co-op has RAS, too! Well, 'had' may be a more appropriate word - Michelle (my other new RAS BFF) said that Lucy only has about one episode a year now.
|That's Lucy in the blue shorts, across the circle from my boy.|
It's so encouraging to hear a mother talk about RAS as if it was something from her daughter's past. I've read so much about kids not actually outgrowing RAS that I had started assuming it would be a lifelong struggle for L. Our talk this morning was a welcome reminder that it's likely we won't be dealing with L's seizures forever.
I would never wish RAS on anyone (except maybe some of those doctors, hmm...) but I am grateful to be connected to two new friends that will be able to relate to this aspect of my life. And I'm cooking up a plan to talk them both into writing their stories so I can publish them here, too! What do you say, girls?