Most parents of children with RAS have probably felt this way more times than they can bear to admit. I caused L's second seizure by stepping on his finger as he crawled around a GAP changing room floor. (Needless to say, I left without any skinny jeans that day.) I've triggered seizures by leaving a room without telling him I'd be right back, changing his clothes, misunderstanding him, startling him with loud noises, holding him in my lap in a taxi when he wanted to explore the dirty ashtray... but those were all accidental and unintentional.
|How can you discipline someone this cute?|
For me, I finally decided two things.
One: there are two choices when it comes to L. A few years down the road, he can be a naughty, undisciplined boy who has seizures, or he can be a polite, well-behaved boy who has seizures. There is no third option where he doesn't have seizures. Of the two, there is no question what we want for him.
Secondly: when I discipline L and he has a seizure, I didn't cause the seizure. I haven't ever caused any of his seizures. He has an awful disease, and that horrible disease causes his seizures. Though it may just be a matter of semantics, it helps me keep the right perspective.
His seizure are outside of my control. As his mom, all I can do is prepare him the best I can for a good future, seizures or no seizures. And training him to be obedient and well-behaved is one of the best things I can do for his future.